I’am a 38 yr old female with a no clear diagnosis
it all started in 1998 with abnormal ecg(inverted T, occasional ST elevations),at the inferior lateral , elevated d-dimer ,eleveted reuma factor
in 2001 to 2003 i had cronic bronchitis my immunoglobulines in subclass IGG1 and IGG3 were on the low side .
but in 2004 i started getting shortness of breath
first it only happened to me AFTER exercise .
that same year my D-Dimer started to elevate, but I got no treatments .
In 2003 and 2006 I did left side heart angiogram but no atherosclerosis found .
in 2006 two heart echo showed elevated pulmonary artery pressure (may and august) , (42 and 50 mmhg ),But in nov 2006 i did rightside catherization , but my pulmonary artery pressure was not elevated ( pap was at 26 mmhg ).
in 2006 my episodes of breathlessness , dyspnea , pressure in my heart , and weakness has become severe .
i can not exercise any more , do any household work ,or get too emotional because afterward i will become out of breath .
first (in 2007) My doctor gave me betablocker(concor) , but after almost 3 weeks my dyspnea got worst ,i will get very deep sleep and i will wake up and immediately i will get dyspnea (i do not snore !).
always , my lung test shows a great lungs capacity (i can inhale more air than usually ), overinflated, high residual volumes (air trapping) , but no ephysema as yet .
in September 2007 idid a stress test with blood gas measurement(finger test, blood vein ) before , during and after exercise showed a low ph (7.2), and low hco3 13.7 during and after exercise and my co2 (60) and saturation(92%) was low before starting the test and went up during and after exercise ( 96% after exercise ). they told me i had a mild metabolic acidosis , and should do more exercise , but when i do it, my dyspnea will become worst and with any physical activity my heart rate will go up to over 130 bpm (sometimes up to 156 bpm ),
.
I also notice that if I wear TIGHT CLOTHES (LIKE TIGHT JEANS PANTS ) ,OR IF I BEND DOWN , CARRY OR LIFT ANYTHING HEAVY FOR A WHILE , I WILL END UP WITH DYSPNEA THAT WILL LAST LIKE FOR EVER , WITH PRESSURE IN MY CHEST UP TO MY PALATE., I WILL ALSO FEEL REALLY WEAK .
I FEEL LIKE MY HEART HAS GONE THROUGH A SHOCK !.
LAST YEAR IN APRIL 2008 , I DID A CT ANGIO SCAN OF THE THORAX AND MY DOCTOR SAW RESTS OF TROMBOSIS IN MY LUNG ARTERIES . I WAS PUT ON WARFARINE MEDICATION(coumadine) ,BECAUSE THE DOCTOR BELIEVE THAT I SUFFER FROM CRONIC PULMONARY EMBOLISM
HE TOLD ME THAT MY DYSPNEA WILL DISAPPEAR FOR SURE AFTER A FEW MONTHS WITH THE MEDICATION AND THAT I MUST TAKE THIS MEDICATION FOR LIFE .
BUT WHEN I THOUGHT I WAS FINALLY DIAGNOSTED AND GOT A CURE FOR THIS DYSPNEA , AND PRESSURE IN MY HEART , I STILL FACE THE FACT THAT MY DYSPNEA , PRESSURE IN MY HEART , AND ALL MY SYMPTOMS MENTIONED ABOVE ,IT WAS I BIG DISAAPIONTED TO NOTICE THAT UP TILL NOW MY HORRIBLE SYMPTOMS NEVER DISSAPPPEARED .
NOW EVERY AFTERNOON AFTER 5 O”CLOCK , I WLL GET THIS HORRIBLE PRESSURE , THAT FEELS LIKE MY HEART CAN NOT HANDLE THE BLOOD AMOUNT IT GETS .
MY DOCTOR GAVE ME OTHER MEDICATIONS FOR HEART DISEASE LIKE VASTAREL (FOR ANGINA PECTORIS) AND SINGULAR , BUT TO MY DESPITE THESE MEDICATIONS MAKES THE PREESURE I FEEL IN MY HEART WORST WORST , I Can not take them .
I ‘am only taking coumadine(warfarine).
i really don’t know where to look any more for answers ,and though where i live(a small island in the Caribbean ) medical help is very poor .(TO DO MOST OF MY TESTS I HAVE TO TRAVEL ABROAD .
last year IN JANUARY , I DID A CARDIOPULMONAR TEST , and the doc saw the ekg chances .i had a ST-T DEPRESSION IN V5 and paroxysmal auricular arrithmias .
lately my doctor suspect me from having a type of vasculitis (i tested only one time positive for ant-cardiolipine and ANTI-ANA )but he gave me no futther suggestions or testes to proof this fact
i really need to know WHAT COULD THIS BE ! IS IT MY HEART , MY LUNGS , MY AORTA , ANY BLOOD CIRCULATION PROBLEM ,OR AN AUTO –IMMUNE DISEASE?.
PLEASE HELP ME , I NEED SOME MEDICAL ADVICE DESPERATELY !
MAYBE THERE IS SOMEONE OUYT THERE THAT GONE THROUGH THE SAME THINGS OR TEST AND KNOW WHAT THIS COULD BE !
I WILL ALSO LIKE TO GET A REFFERAL OF A GOOD DOCTOR OR SPECIALIST IN THESE TYPES OF COMPLICATIONS THAT KNOW EXACTLY HOW TO GIVE ME A DIAGNOSIS .
so please help me out here !
I thank you all
God bless you !